Resources

Resources by The Max Foundation

My PCR Toolkit

As a community-driven initiative, My PCR seeks to provide resources that address needs identified by the CML community . The My PCR partners expressed a need for clear and simple educational resources about how to advocate effectively for access to PCR testing . In response to this request, My PCR initiated the process of creating the My PCR Advocacy Toolkit . The content in this toolkit was generated through an iterative co-creation process that involved feedback from the CML community and strategic guidance from a steering committee composed of partner advocates from Asia, Africa, South and Central America, and North America.

This toolkit is a resource for advocates that provides educational information about PCR testing and the importance of regular PCR monitoring for patients with CML and provides guidelines on how to strengthen advocacy efforts to bring better access to PCR testing to your local community.

Download the My PCR Toolkit
My PCR 2016 Executive Report

In 2016, the My PCR campaign focused heavily on increasing direct engagement with My PCR partner organizations. Based on feedback received from partner organizations in 2015, we tailored our 2016 campaign towards creating initiatives that would directly support partners to develop advocacy strategies in their countries aimed at improving access to PCR testing. Read more about our 2016 initiatives and partner engagement.

Download the My PCR Executive Report

Advocacy in Low- & Middle-Income Countries Focus Group Report

“Advocacy in Low & Middle-Income Countries: A study on overcoming barriers to accessing diagnostics in CML” represents the views and opinions of patient advocates in low- and middle-income countries and was developed following a series of focus groups conducted in 2013. The goals of these focus groups were to:

  • Understand patient advocates’ perspectives regarding advocacy
  • Understand patient advocates’ perspectives regarding increased access to PCR
Download the Advocacy in Low- & Middle-Income Countries Focus Group Report

Information about PCR and CML

Frequently Asked Questions
Dr. Michael Mauro, Memorial Sloan Kettering Cancer Center

 

Patient Friendly ELN Guidelines
CML Advocates Network

 

Adherence to Therapy Video
CML Advocates Network

 

CML Resource Page
The CML Support Group
Focus Group Report
The Max Foundation

 

Animated video on PCR
CML Society of Canada

 

Virtual Education Program
International CML Foundation

 

CML Resource Page
CML Society of Canada
International Scale PCR Webinars
Asuragen

 

International Scale PCR FAQ for Physicians
Asuragen

 

The CML Guide
The Leukemia and Lymphoma Society

 

CML Disease information
The Leukemia and Lymphoma Society

Diagnostic Programs and Tools

Cepheid-MAX Agreement
The Max Foundation

 

iCMLf Diagnostics Program
International CML Foundation

 

My CML Tracker
The Leukemia and Lymphoma Society

 

Ask the CML Experts
National CML Society

 

PCR Tracker APP
CML Society of Canada
CML Connection
National CML Society

 

Get IS RQ-PCR Now
Novartis

 

monitorcml.com
Novartis

 

Patient and Caregiver Online Community
The Leukemia and Lymphoma Society
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