Treatment-Free Remission is a deliberate, carefully monitored cessation of therapy embarked upon by patients after discussion and agreement with their doctors. When it works, the outcome has been described as a “functional cure” — cure meaning the patient has completed treatment and is in remission; functional because many patients may still have evidence of chronic myeloid leukemia (CML) by a polymerase chain reaction (PCR) test but remain stable and safe off treatment.
As a community-driven initiative, My PCR seeks to provide resources that address needs identified by the CML community. The My PCR partners expressed a need for clear and simple educational resources about how to advocate effectively for access to PCR testing. In response to this request, My PCR initiated the process of creating the My PCR Advocacy Toolkit. The content in this toolkit was generated through an iterative co-creation process that involved feedback from the CML community and strategic guidance from a steering committee composed of partner advocates from Asia, Africa, South and Central America, and North America.
This toolkit is a resource for advocates that provides educational information about PCR testing and the importance of regular PCR monitoring for patients with CML and provides guidelines on how to strengthen advocacy efforts to bring better access to PCR testing to your local community.
In 2016, the My PCR campaign focused heavily on increasing direct engagement with My PCR partner organizations. Based on feedback received from partner organizations in 2015, we tailored our 2016 campaign towards creating initiatives that would directly support partners to develop advocacy strategies in their countries aimed at improving access to PCR testing. Read more about our 2016 initiatives and partner engagement.
“Advocacy in Low & Middle-Income Countries: A study on overcoming barriers to accessing diagnostics in CML” represents the views and opinions of patient advocates in low- and middle-income countries and was developed following a series of focus groups conducted in 2013. The goals of these focus groups were to: